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Living with Nystagmus: One Premature Baby and His Milestones

Submitted by on August 3, 2013 – 11:28 PM One Comment

live_photo16826728Nicklas is one of the twins who were born 4 months too early weighing only 1000 grams. Today, Nicklas is a loving, kind and compassionate teenager who is suffering from Beriberi (Vitamin B1 deficiency) along with Bronchopulmonary Dysplasia, Asthma and Nystagmus. I love and adore him so much. I think his smile and inner strength will inspire many others. Behind these deep brown eyes is someone with a huge heart, someone whose life has been filled with miracles and someone who has fooled death several times.


When people first meet him, they stare bewilderingly into his eyes, not being able keep up with the rapid movement of his Nystagmus, automatically writing him off as sick, blind, and shy. Having been born with 1000 grams in the 24th week, people see his and his twin brother’s lives as the best life lessons filled with mysteries and miracles. He has been making efforts his entire life in order to survive in this world that was, apparently, meant to be for the healthy people only. But, he is a man of strong will.


His faith and will has made him strong with the passage of time and helped him surpass the difficulties. He knows that doctors can prescribe medicines and perform procedures that can alleviate the short-term illness of patients who have been diagnosed with an illness that will affect them the rest of their lives. But as for the long-term pain, he knows that no doctor can give him advice on how to put a disability like Nystagmus or Bronchopulmonary Dysplasia behind the curtain and live his life to the fullest. If there is anything we are proud of him, it is his ability to overcome obstacles.


He has always been a little wounded healer who will one day become the best healer as he knows his body may be weak but his strength comes from within and it is endless. While he was lying at the hospital lately, there were many doctors running in and out of his room, looking for answers to his illness. The only person who was not in anxiety and fear was Nicklas. Today, his Nystagmus has decreased to the point where he can actually feel comfortable enough to look people in the eyes and smile.


After reading about Nicklas, you may know that we are talking about a child who was born too early with very less weight and yet he chose to live and beat the obstacles. If you could see the world through these brown eyes, you would realize that he may not see what we see but he is thankful for what he can still see. He is thankful for everyone and everything around him.


About the Author: Gottfried and Patricia are the parents of Nicklas. They can be contacted at [email protected]


About this article: This article is competing for the JPMS International Medical Writing Contest 2013

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  • Anum Wasim

    Very moving! May Niklas be blessed with happiness and love beyond measure.